Update on My Fight With Cancer - Alhamdulillah for the Strength

Assalamu alaikum. I was diagnosed with PNET on June 7th, 2025 at 42 years old. I have a wife and a 2-year-old son and we live in Bangkok, Thailand. It’s been a whirlwind for me and my family - first they thought it was PDAC and we were told maybe less than a year, then we found out it’s neuroendocrine tumors and were told I might have 3–5 years. SubhanAllah, it’s been an emotional ride. -- UPDATED Dec 3 Alhamdulillah I’ve completed 2 rounds of chemo and 3 rounds of PRRT with Lutetium, a targeted nuclear therapy, because my cancer cells have the right receptors. I’ve also had 2 rounds of RFA on pancreatic tumors, which largely removed the primary tumors. All of this has happened since June, so things moved very fast. Liver function (numbers over time): GGT: 813 → 603 → 478 → 999 → 1,674 → 1,263 → 1,891 (an increase that may suggest worsening blood flow in the liver) ALP: ? → ? → 126 → 176 → 259 → 257 → 369 (rise may suggest the same) ALT: 322 → 170 → 37 → 41 → 83 → 53 → 91 (ups and downs, indicates liver stress) AST: 53 → 68 → 67 → 69 → 107 → 95 → 134 (also suggests increasing stress on the liver) Cancer markers: CA 19-9: 2,384 → 743.8 → 629.3 → 738 → 1,212 → 1,739 (still below baseline; RFA likely affected these values; stable CEA supports this) CEA: 11.1 → 7.4 → 6.1 → 6.7 → 6.7 → 8.3 (relatively flat, which supports a hypothesis of stability) Updates: My nuclear team and primary oncologist are thinking about stopping PRRT after the 4th round (which would complete a full course). The concern is hepatitis-like inflammation in the liver and that the liver size hasn’t shrunk yet. Although more rounds can improve prognosis, I’ve been told prognosis hasn’t clearly changed even though the therapy appears to be doing something. The main reason to pause is to let my liver rest and heal. PRRT could be used again later as salvage therapy if needed to target tumors in the pancreas and liver. What’s next: I’ll have an MRI to find the cause of the inflammation and make sure the tumors haven’t progressed - we want to confirm the treatment is working as planned. After that, we’ll decide whether to switch to a different treatment to try to shrink the liver and improve quality of life, or enter a period of stable disease (which for NETs is similar to remission for other cancers). NETs are slow-growing, so stable periods can last 2–4+ years. If the disease returns, another PRRT course might be an option, or newer treatments might be available then. Monthly somatostatin analog injections will still be needed to help control progression, even during a stable period. -- I’ve been keeping a record of every step - not just the medical parts but the feelings, small wins, and the hard days. If someone else is going through this, you’re not alone. I’m sharing my daily journey so others can learn from it and maybe find comfort. May Allah grant shifa to everyone facing illness. If you want to follow along with updates, I’m posting regular videos so family and others can see what’s happening and maybe take something useful from my experience.