Hakkunde e Ndeeram ngam Kankere - Alhamdulillah jooni e Ngoodan

Assalamu alaikum. Mi be njahi PNET on June 7th, 2025, ha 42 years old. Mi yahi wife e 2-year-old son am e miɗo ɓurɗi e Bangkok, Thailand. E nden mi e family am, ko feƴƴe-kaawoo ɓe no ndiyam ko PDAC e ɓe njahi mi e ɗuum no fecciki lewru, ngoni mi yahi ngol ko neuroendocrine tumors e ɓe njahi mi ko miɗo waawana 3-5 years. SubhanAllah, ko ɓurndu laawol. -- UPDATED Dec 3 Alhamdulillah mi yahi 2 rounds of chemo e 3 rounds of PRRT e Lutetium, ko nder targeted nuclear therapy, sabu ɗum dirka mi agresi cells ɓe jogi e jam. Mi yahi e 2 rounds of RFA on pancreatic tumors, ɗum fow jooɗi ɓe mawɗo tumors. Won ko waɗi ɗum ko June, ko ndiyam njiyondirɗi. Liver function (numbers over time): GGT: 813 → 603 → 478 → 999 → 1,674 → 1,263 → 1,891 (njiyondirɗo woni ko nder waawde jooɓol e liver) ALP: ? → ? → 126 → 176 → 259 → 257 → 369 (njiyondirɗo njahi ko nder waawde) ALT: 322 → 170 → 37 → 41 → 83 → 53 → 91 (ne ɗi fela enda, ko wondi stress e liver) AST: 53 → 68 → 67 → 69 → 107 → 95 → 134 (no jahi njiyondirɗo e stress e liver) Cancer markers: CA 19-9: 2,384 → 743.8 → 629.3 → 738 → 1,212 → 1,739 (no ɓe wondi haɓe; RFA e mi yahi no anndi ɗii; CEA wondi ndemji) CEA: 11.1 → 7.4 → 6.1 → 6.7 → 6.7 → 8.3 (no jahi flat, wondi jaanngol ko waawde ma) Updates: Mi hoɗi ndotti team am e oncologist neddo am ndiyam e faawa ɓe njahi stoppu PRRT after the 4th round (ko ɓe njahi fow golle). Nden miɗo vandaag ko hepatitis-like inflammation e liver e ko laawol e bewul walde. Ko ɓuri round ka waawna jooɗi kuutore, ammi njiɗi ko prognosis hasn't clearly changed saraka therapy no jahi wondude. Laawol ɗi to stoppu ngoni ko waawde akah e liver heɓe mi. PRRT ma ɗe ittinira jooni ko ngol to walde e pancreas e liver. Ko nden: Mi yahi MRI ko faawa ngal e nden ko jooɗi ko njiyondirɗo e jooni, kula ɗe njahum no jahi janngol ko wala wondi. Sogoo nden, ɓe yahi jaŋtude hoto to treatment wo jogi ko waawande e liver e janngol bobdi, walla mi njahi yi’orde ko stable disease (ko nder NETs no huri ko remission to cancer ɓe ɓuri). NETs no ɗe njahi golle, ndiyam stable ko 2-4+ years. So kala ndiyam anndi, tonnage ma PRRT njahi rawa ko ndiyam, walla treatment wo fow njahi be waɗi nden. Monthly somatostatin analog injections ɗe fow fuɗɗi heɓa waawro progress, hoto nden ko stable period. -- Mi yahi keeɗi ndotti ko ɓe ɗo waawde-all of this ko medical ɓe mi ɓuri, ɗo jom e kadi ni,ɓe small wins e ko long days. So kadi heɓi a jooɗi ɗi, a njahi naange. Mi yahi ɓe herɓe ngal jaŋtude am, so ɓe wali ko ɓe innit e mi e woɗɗi ɗum jooɗi ko ɓe njahi ndendi.